Patient and Public Involvement
South Coast DeNDRoN aim to involve all members of the public affected by the diseases represented by the DeNDRoN or people who have an interest in this group of diseases. By people affected, we mean people who have these diseases, their carers, family and friends.
Ways to get involved
Being involved is not just about taking part in clinical trials. There are a range of activities that you may be able to get involved with. If you would like to keep up to date with activities of South Coast DeNDRoN please sign up for our newsletter.
Patient and public involvement is important to make sure we are getting it right. We need your help in:
- Identifying research
- Designing studies
- Giving feedback and interpretation of results
We also need people to join our Advisory Groups or Steering Committee to give the views and perspectives of patients and public.
If you have taken part in research and would like to tell us of your story and about your experience please let us know. If any of these areas are of interest to you or if you have any other suggestions, please do contact us. Whatever your thoughts, ideas and views we would love to hear from you.
The UK Clinical Research Network is a good resource for information about patient and public involvement in research. You may also like to visit the INVOLVE website.
There are also opportunities to be involved with DeNDRoN on a national level. Please visit the DeNDRoN website for more information.
If you would like to find out more about taking part in research studies, please visit our Trials page for more information.
The UKCRC produce a booklet “Understanding Clinical Trials” which can be ordered from their website.